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Victoria's avatar

I wholeheartedly agree Larry. I know that many caregivers here in the UK are burning out trying to make all the caring perfect - after all with chronic conditions, treatment and unpredictable evolution of illnesses and an individual's health, no one can predict or pinpoint an exact time of when someone is in palliative-end of life, until those very final days. There are limited resources, limited availability of support. Unpaid carers are struggling.

Even with me here 24/7 and all our blessings- my father's last moments at home and several others were somewhat traumatic, falls and tachycardia episodes. We enabled his wish to pass at home perfectly, but pieces were hideous, AND it was all imperfect in a very human meaningful way. Wholly paradoxical. I know other caregivers are suffering much worse situations based on what is shared on the online support forums.

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Peter ciccariello's avatar

Heartfelt writing.

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